Tomato boy

I really like tomato soup. Oh, there’s this one place in the city (San Francisco that is) – I haven’t figured out which days it’s their soup of the day, but they make a heavenly tomato basil! But it’s kind of a different story when your kid smells like it! So much so that now … [Read more…]

Monday update

It’s now been two weeks since Niko was admitted for his MIBG treatment. It’s been a rough road – after the week long hospital stay, Niko was only home for a 2 nights before heading to the emergency room for stomach pain and vomiting. He was definitely completely blocked up. It was a pretty scary … [Read more…]

Neuroblastoma and the Power of Targeted Radiation

Hi! I’m Tony, Niko’s dad. I asked Natasha if I could guest-author a post about the treatment Niko recently finished¬†at UCSF, both because I think it is scientifically interesting and because I’ve had a few ask for more details. I’ll start by saying that I learned a lot during the¬†week, both about cancer and about … [Read more…]

Watch this (please!)

I’ve got some homework for you guys, in case you’re up for it and have a lot of spare tissues lying around. Watch this documentary. There are 4 parts to it, this is just the first one, so yes – it is a time commitment. The rest are here. Unfortunately I can guarantee you that … [Read more…]

Tomorrow

Tomorrow we find out which arm of the clinical trial Niko will he assigned to. Yesterday, maybe it was a mistake, but we read about each one of the treatment combinations and the side effects there of. And oh man…  Now I don’t even know what to hope for, besides the general hope that he … [Read more…]