Monday update

It’s now been two weeks since Niko was admitted for his MIBG treatment. It’s been a rough road – after the week long hospital stay, Niko was only home for a 2 nights before heading to the emergency room for stomach pain and vomiting. He was definitely completely blocked up. It was a pretty scary … [Read more…]

Neuroblastoma and the Power of Targeted Radiation

Hi! I’m Tony, Niko’s dad. I asked Natasha if I could guest-author a post about the treatment Niko recently finished¬†at UCSF, both because I think it is scientifically interesting and because I’ve had a few ask for more details. I’ll start by saying that I learned a lot during the¬†week, both about cancer and about … [Read more…]

Watch this (please!)

I’ve got some homework for you guys, in case you’re up for it and have a lot of spare tissues lying around. Watch this documentary. There are 4 parts to it, this is just the first one, so yes – it is a time commitment. The rest are here. Unfortunately I can guarantee you that … [Read more…]


Tomorrow we find out which arm of the clinical trial Niko will he assigned to. Yesterday, maybe it was a mistake, but we read about each one of the treatment combinations and the side effects there of. And oh man…  Now I don’t even know what to hope for, besides the general hope that he … [Read more…]


As you can see – I’m struggling to keep up this blog because – I don’t want to use it for negative thoughts and feelings, I don’t even want to voice my fears out loud to an empty room because I don’t want to give them life outside of my head, much less put them … [Read more…]