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Today we signed a paper saying that we understand that there is a risk, and in Niko’s case the risk is doubled (20-40%) of developing liver failure from the bone marrow transplant that he starts next week. And we also understand that about 2-4% of kids die not from neuroblastoma, but from not recovering from … [Read more…]

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Very few things are more depressing than “pediatric bone marrow transplant”… Am I right? But at the same time – few things can offer that much hope..

Baby faves of 2015

In an effort to focus on the positive, I’d like to do a mini series of the best things from 2015. And adding in an element of good old shopping therapy – let’s look at the best “stuff”! And today that will be my favorite baby stuff!   Cloud B Sleep Sheep. I’m not sure … [Read more…]

Monday update

Last week was a blur – with things getting back on track after the holidays. We’re in a “calm before scans” period right now, and they are inevitably getting closer and the nerves are starting to build… But today – I took Niko to the play cafe we used to go to on occasion. I’ve … [Read more…]

Monday update

Happy New Year! I wish I could say that last year has flown by or been great, but… It hasn’t really. And it’s looking like this one will be a bit intense with Niko’s treatment lasting through at least August. But – I was focusing on baby steps with him getting better and it is … [Read more…]